What the Imaging Shows After Rads
Okay, here is the final roundup of imaging results after bone scanning, MRIs, and CTs:
BRAIN/INTERNAL AUDITORY CANAL
- Improved leptomeningeal disease along the
- L cisternal 5th cranial nerve (affects facial nerves)
- bilateral inferior cerebellar hemispheres (base of the brain)
- NO NEW DISEASE
- Decrease in lesion L upper cervical cord at level of the dens
- NO NEW OR ENLARGING LESIONS
- Stable enhancing masses (probably hemangiomas)
- Stable micronodules scattered in both lungs
- Worsening L hip lesion (qualifies me for clinical trial in SEA)
- Stable/possible reduction in lesions in:
- ~8th rib R lateral
- lower thoracic spine
- upper lumbar spine
- Stable small area of low-level activity in L upper sacrum/S1.
- Stable sclerotic bone lesions
The doctors believe the overall picture is good; it looks very much like I have survived metastasis to the meninges for the SECOND time. We are concerned that I am still suffering from side effects from the radiation, possibly including malabsorption of the nutrition I put into my body religiously every single day, as I am struggling to regain weight. But they have several plans to deal with that if I can't get it turned around very soon!
I am still suffering from a nearly constant vertigo that makes functioning very difficult, and exacerbates the nausea/vomiting issues. I also get a terrible, creepy feeling on the most-treated part of my head/brain that can probably best be described as feeling like I have shingles on the brain under the skull---YUCK!
Mr. Puffy injections clearly affect whatever is happening in my brain for the better, and usually I feel best in the days right afterward. By the time I'm due again, I've usually been stuck on the sofa for several days, feeling my head spin in circles. I am always so grateful for that life-saving treatment, and the loving care with which it is given!