Friday, April 22, 2011

Checking Which Way the Wind Blows

One Step Forward, Two Steps Back?

Hmm...well, I'm definitely doing better from the effects of the radiation. I'm still focused each and every day on getting nutrition, fluids, and supplements in me to help me rebuild from the radiation damage to the body. My vitals are steadily improving, as is my blood work. Happily, I've even been able to putter pretty consistently a little each day since last Sunday (I missed only Wednesday). My body followed its normal pattern of behavior after receiving the last Mr. Puffy injection and portacath infusion. So things seem to be going well enough.

Good morning! From l to r: Zip Fizz, Nano Green Tea, Poptosin,
glutamine, creatinine, wheat grass, vitamins and minerals.

Vitamins B-6, B-12, C, D-3, and E; Alaskan salmon oil;
coral calcium; prolamine iodine; and selenium.

Clipping my homegrown wheat grass for my fresh-pressed morning shot.

But there's another tool I use; a sheet I call the "Health Diary." I simply write down any changes or things I notice each day, and keep track of how I feel each day of the drug cycle. And in reviewing it in its totality from the past two weeks, it's pretty obvious that something is NOT RIGHT. I'm getting worse in some areas, not better.

Looking at the physical effects I'm noting, particularly those ones of "that incredible pressure" that has been building in my ear and where I wake up out of a sound sleep each morning vomiting and with a headache, I'm suspicious that I have an issue in the Internal Auditory Canal again/still. So I'm getting an appointment both with House Ear Clinic again (might as well rule out infections et cetera) and Cyberknife. I remember both doctors at both places stating that Cyberknife could be used as "salvage operations" if general field radiation was not able to treat some of the areas of the brain and spine where lesions might be located.

I did manage to achieve another milestone this week: I was finally able to do a couple loads of my laundry! It might not seem like much to you, but it's one of the things on the scale of what you have to do to be independent...and that's pretty darn important to me.

Even though I still feel pretty yucky, I manage to pull myself up off the sofa each day and get outside into the sunshine and fresh air. I take pleasure in the absolute simplest of things: the fresh air. The sunshine's warmth. The way the breeze whooshes through the pines. The cry of the mourning dove. The buzz of the bees from my volunteer hive. The flash of the oriole's yellow wings. The gift of a surprise bird's nest when cleaning out my flower pots. The horned toad basking in the sun while I plant a few little plants.

Regardless of what lies ahead for me, my first commitment remains to my quality of life so that I can continue to parent my children to the best of my ability each day that I'm here on Earth. I am still not without hope.

1 comment:

Suzanne Di Silvestri said...

I, too, measure my well being in terms of loads of laundry. Today I did four! Good thing since I have chemo tomorrow and won't do any for a week! :-)

Hang in there!